2020-05-21 - New member - GoudiJulie

Discussion in 'Acromegaly / IAA / Cushings Cats' started by GoudiJulie, May 21, 2020.

  1. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Hello everybody,

    First, I’d like you forgive my bad English...

    I’m Julie, French, and Goudi’s owner, a 9 years old male cat who’s diagnosed diabetic the 2nd of January. I started to give him insulin twice a day and follow him at home with glucometer.

    I also joined a marvellous french speaking Facebook support group named Diabète Félin : apprendre à gérer son chat diabétique, which is managed by a woman known by many of you : @Steph & Quintus & L & O.

    Unfortunately, we discovered that Goudi seems to have the Cushing disease, with a pituitary microadenoma, which leads to have a very, very difficult diabetes regulation. I give him currently 16 units of Lantus twice a day, and his glucose rates stay around 350 mg/dl (i.e 19,5 mmol) although he recieves strong treatment against Cushing (20 mg of Trilostane : Vetoryl). Stephanie advised me to join your group because there are most cats here with this kind of disease.

    I’d like to have owners testimonies and advices about how to manage diabetes with Cushing (insulin rates with Vetoryl treatment, veterinary support, and any other usefull advice) in order to succeed in breaking the glucose curve !

    Thank you very much for your help !

    Julie & Goudi
     
    Last edited: May 23, 2020 at 5:29 AM
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  2. jt and trouble (GA)

    jt and trouble (GA) Well-Known Member

    Joined:
    Dec 28, 2009
    It may take a day for more replies. Not many kitties have this disease. ok? Hang in there ;)
     
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  3. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Ok, I will wait, thank you again Jeanne
    :bighug:
     
  4. jt and trouble (GA)

    jt and trouble (GA) Well-Known Member

    Joined:
    Dec 28, 2009
    My pleasure. I PM'd @Wendy&Neko to come talk with you.
    I was reading here and learned a lot just from some of the threads. You might try reading some while youre waiting.
     
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  5. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Thank you, I read the threads about Cushings and I wonder if some owners give extra insulin doses (I give 16 units).
     
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  6. jt and trouble (GA)

    jt and trouble (GA) Well-Known Member

    Joined:
    Dec 28, 2009
    Thats what I was reading here also. Most of the threads indicate thats how people have to deal with Chushings. Such high dosing its both amazing and sobering.
     
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  7. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Did you see such high dosing here ?
     
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  8. jt and trouble (GA)

    jt and trouble (GA) Well-Known Member

    Joined:
    Dec 28, 2009
    yes through the years I'd have to say its come down some but yeah I often wonder how people can afford so much insulin.

    But please know I AM NOT an expert.
     
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  9. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Yes but you are here since much more time than me so your knowledge is precious for me :bighug:
     
  10. JeffJ

    JeffJ Well-Known Member

    Joined:
    Jul 7, 2016
    Bonjour. My French is limited, and I traded some chats with Stephanie. Your English is great. Mon Pere a habite en Ville d'Avray, pres de Paris. Il y a 1977-1980. I enjoyed visiting him, and now you see my French is limited after so many years.

    There were not many Cushings cats on this forum. I would invite you to look thru old threads - the search works. We had Ana and Frosty - mostly posting in the Levemir forum.

    And Rardito's Mitsy -
    http://www.felinediabetes.com/FDMB/threads/mitsys-bg-lowering.205332/

    You can find threads they posted by going to their profile. Just click on a person's picture in the left, then look at their profile. Then look at their "postings".
    upload_2020-5-22_18-37-28.png
     
  11. Wendy&Neko

    Wendy&Neko Senior Member Moderator

    Joined:
    Feb 28, 2012
    Hello and welcome.

    We have had a few Cushing's kitties here, but it's been a little while since someone current. Ana & Frosty, but Frosty only got up to 3 units, his spreadsheet here. Purrdy was somewhere around 11-12 units I think - been a while and going off old memories. MaryAnne's Tuxie (Tuxedo Mom) got a little over 6 units at times. Frosty was the only one on Vetoryl.

    Do you have a spreadsheet we could look at? We did have one kitty many years ago (Rose I think), whose insulin dose dropped significantly on Vetoryl, to the point that she hypo'ed. :(

    You might be interested in this paper on a PDH cat going into remission after starting Vetoryl.
     
  12. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Thank you for all these informations !

    I already know the paper, it helped me to accept to increase Vetoryl treatment when vet told me to do it.

    That’s the link to my SS : https://docs.google.com/spreadsheets/d/1LtkUhc861aeu5ChtZRMynbJVX3xJXhNweB7JZNoD-2E/edit
     
  13. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Hello ! Ville d’Avray is not so far away from where I live !! Nice to see French speaking, merci !

    I will look at all of these informations, thank you again :bighug:
     
  14. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    I’m going to sleep now, it’s 3 a.m here ! Thank you everyone, see you soon ! :kiss:
     
  15. Lu-Ann Monson

    Lu-Ann Monson New Member

    Joined:
    May 22, 2020
    Hi everyone! I met Julie on Facebook tonight. Needed to check in here, its been a long time! Had to reset just to find Grayson's SS!

    Glad to see ppl here have used the vetoryl, Im completely unfamiliar with it. Glad theres a tx available.

    If I can offer anything, Im happy to. Hoping I can learn something new! You know what they say abt teaching an old dog new tricks! ;)
     
  16. Wendy&Neko

    Wendy&Neko Senior Member Moderator

    Joined:
    Feb 28, 2012
    Hi Lu-Ann! Long time no see. I'm a packrat and might be able to find the link to Grayson's SS if you want it.;)
     
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  17. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Again thanks a lot Lu-Ann for your precious help...
     
  18. Steph & Quintus & L & O

    Steph & Quintus & L & O Well-Known Member

    Joined:
    Dec 9, 2017
    Following! Julie is on the francophone group I manage :)
     
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  19. Steph & Quintus & L & O

    Steph & Quintus & L & O Well-Known Member

    Joined:
    Dec 9, 2017
    Thankfully in non-US countries it's not quite as expensive...
     
  20. Steph & Quintus & L & O

    Steph & Quintus & L & O Well-Known Member

    Joined:
    Dec 9, 2017
    Hi everyone and thanks for welcoming @GoudiJulie here! I encouraged her to come and post on FDMB because although we have a bunch of high-dose cats on the francophone group, I'm absolutely not familiar with Cushing's or the treatment Goudi is taking. I personally would keep on increasing the dose by 1ui every 6 cycles – particularly as Goudi has been up to 19ui (reduced to 16), my reasoning being that when you have major insulin resistance, if you "throw" enough insulin at it, at one point it will start giving way. But are things different with Cushings?

    SS: https://docs.google.com/spreadsheets/d/1LtkUhc861aeu5ChtZRMynbJVX3xJXhNweB7JZNoD-2E/
     
  21. JeffJ

    JeffJ Well-Known Member

    Joined:
    Jul 7, 2016
    Correct Steph. Increases are still needed until the cat gets some regulation. Those high numbers are unhealthy for the cat.

    Kudos to Julie for creating and maintaining the spreadsheet, and for all the testing.
     
  22. Steph & Quintus & L & O

    Steph & Quintus & L & O Well-Known Member

    Joined:
    Dec 9, 2017
    @JeffJ we're spreadsheet maniacs ;-)
     
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  23. Wendy&Neko

    Wendy&Neko Senior Member Moderator

    Joined:
    Feb 28, 2012
    Not different with just Cushings, but Vetoryl/Trisolane in the picture can make a HUGE difference, and suddenly. When was it started? Once it starts working, it can make a major impact on dose needed. In the case of Rose above, she was too conservative on her reductions, and the monster depot was the cause of the fatal hypo. :( Best be cautious.
     
  24. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Thank you ! The French group gave me the SS and I complete it with rates of BG !
    I know I have to try to go further with dosing but I wonder if it will efficient (I decreased doses from 19 to 16 and kept the same levels of BG... strange !) and I’d like to have testimonies with Vetoryl... But it seems to be so uncommon !

    Thanks again for the support ! :bighug:
     
    Last edited: May 23, 2020 at 7:33 PM
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  25. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Hello Wendy,

    Goudi started to recieve 10 mg of Vetoryl on mornings since the 27th of February. Then, his treatment increased at 10 mg on mornings AND evenings since the 26th of March (x2).

    Today, results aren’t here for me.

    Do you know how high were Rose’s Vetoryl treatment and insulin ?
     
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  26. Wendy&Neko

    Wendy&Neko Senior Member Moderator

    Joined:
    Feb 28, 2012
    My bad, the cat was Zoey, the caregiver was Rose. Here is Zoey's spreadsheet. Her insulin dose didn't get very high. For more on her Vetoryl dosing (which I couldn't find on the spreadsheet), take a look at this post from the day she started Vetoryl.
     
  27. GoudiJulie

    GoudiJulie New Member

    Joined:
    May 21, 2020
    Thank you Wendy, the SS and the post are full of precious informations !!
     
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