7/21 Luci AMPS 190,2+137,4+178,6+234,8+265, PMPS 267,3+176,4.5+172

Yesterday - Another day of languishing

So we're increasing her dosage back to 1.75 this morning in hopes that this will help her get to the lagoon and surf...this dance is wearing out my dancing shoes...up/down, up/down, up/down. In the last seven months we've had 15 dose increases and 13 earned reductions...whew

 

Amps
I’m in the roller coaster with you, wish it would stop and let us get off for just a bit
Good luck with the increase

 

I wish Luci would decide where she wants to be! Best of luck with this dose increase!

 

Also a passenger in your roller coaster.

 

It is a dance for sure and an exhausting one. Those increases, decreases, back to increase is the Cha Cha dance and not uncommon that they go back and forth between the same dose a time or too. Then the improv Jazz dance , you know, the one where you are up all night testing.....that's the really exhausting dance !

Hang in there. You and Luci are doing well despite how tiring it is.

 

Sometimes you have to go up before you can come down. Good luck with the dosecrease.

 

I hear ya... at least we're all in this one together - that is some consolation

 

Yep...I see that Lou had a couple of really good days...then last night - threw in the towel? We're all hanging on for the ride on this one...

 

Thanks so much for being there with us...as exhausting as it is...there is solace in knowing there are others dancing right alongside us...2 steps forward, 3 back...and right/left, right/left, huff, puff, huff, puff...swwwwwoooooo (that's me expelling a really big breath)...

 

Yep...I agree...it's good to have all of you here along with me - misery loves company doesn't it? Things could be worse...and I'm thankful that they're not...but boy does this seesaw get old...can I get off for a while? My butt hurts

 

Love the dancers! I think I recognize that couple!