Acromegaly: a quality-of-life improving research project

Discussion in 'Acromegaly / IAA / Cushings Cats' started by AcroCatTeam, Dec 8, 2019.

  1. AcroCatTeam

    AcroCatTeam New Member

    Joined:
    Dec 7, 2019
    Hello everybody!

    I am writing from Italy, precisely from University of Bologna.

    I am part of a group of clinical researcher currently working on feline acromegaly. We would gain as much knowledge as possible about epidemiology and quality of life, with the aim to develop better treatment strategies. Obviously, owners point of view is paramount in this process.

    We have created a questionnaire for acromegalic cat owners. It is currently being translated in many different languages in order to reach as many people as possibile all over the world.

    I attach here the link of the english version of the questionnaire:
    https://docs.google.com/forms/d/e/1...kH8T4NeUKm0X5VFcNLAW_v60w/viewform?usp=pp_url

    Every questionnaire filled is a small step in the fight against this disease.

    Feel free to ask anything you want about our project and to give us any suggestion!

    The AcroCatTeam
     
  2. Wendy&Neko

    Wendy&Neko Senior Member Moderator

    Joined:
    Feb 28, 2012
    Some comments.

    You ask about IGF-1 level. The majority of people on this board are from North America, which uses a different measuring system than elsewhere. The blood is sent to Michigan State University for testing. Numbers above 92-100 are considered indicative of acromegaly. The number ranges in your survey are more relevant to testing done elsewhere.

    I didn't notice any questions on quality of life.

    Is your team in touch with the Royal Veterinary College's Diabetic Remission Cilnic?
     
  3. Sienne and Gabby (GA)

    Sienne and Gabby (GA) Senior Member Moderator

    Joined:
    Dec 28, 2009
    The information you are asking (location, email address) requires that a research study be approved by the Italian equivalent of an Institutional Review Board. The information you have requested is considered personal data which automatically triggers the need for an IRB review in the US. Do you have IRB approval and if so, can you provide your IRB number or letter of approval.
     
  4. AcroCatTeam

    AcroCatTeam New Member

    Joined:
    Dec 7, 2019
    Thank you for your suggestions.

    We will modify question about IGF-1 dosing, specifying the difference in measuring system between Europe and North America.

    Regarding quality of life evaluation, we will consider adding some more specific questions about it.

    We are in touch with RVC Diabetic Remission Clinic headed by Prof. Niessen, who collaborated on this project.
     
  5. AcroCatTeam

    AcroCatTeam New Member

    Joined:
    Dec 7, 2019
    In our country an Ethics Committee and/or IRB approval is required when the study involve direct intervention on animals (e.g.: blood sampling). In this type of study an Ethics Committee approval is not required. For these reasons we do not have an Ethics Committee approval for this project.

    All personal data (location, email address) are completely optional and, if given, will be used only for the research purpose.
     
  6. JeffJ

    JeffJ Well-Known Member

    Joined:
    Jul 7, 2016
    Thank you for answering the questions. Will there be updates to the questions? If so I might wait to answer the newer version. My cat Leo had Acromegaly. He was a very sweet cat.
     
  7. AcroCatTeam

    AcroCatTeam New Member

    Joined:
    Dec 7, 2019
    We are currently working on an update. I suggest to wait for the new version. I will post it here as soon as it will be ready.
     
    Bronx's dad (GA) likes this.
  8. JeffJ

    JeffJ Well-Known Member

    Joined:
    Jul 7, 2016
    Thanks. I will wait for the update.
     

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